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Living with Anxiety and Autism
Resources: Mental Health, Personal Stories, For Myself, Youth Talk, For Family / Whānau, Article
My Journey Towards Self-Acceptance

About the Author:

Luke Parkes is an advocate for neurodiversity, passionate about shifting the conversation from awareness to true acceptance. As an autistic person living with anxiety, he shares personal insights and experiences to foster understanding and challenge misconceptions. Through storytelling and advocacy, Luke hopes to create a more inclusive world where autistic people feel seen, supported, and valued.

We have plenty of events dedicated to “awareness” – but we’re at a point where we need more than that. We need Autism Acceptance Month because awareness alone isn’t enough. People know about autism – but do they accept autistic people?  - Luke Parkes



Introduction

For so much of my life, I was so focused on how the world perceived me that I never stopped to consider whether I needed to accept myself. (Spoiler: It’s a significant part of the journey, and it took me far too long to take that step.)

My name is Luke, and I’ve spent years navigated the challenges of being both autistic and living with anxiety.

With Autism Acceptance Month in April, I was invited to share my experience – not just as an autistic person with anxiety, but as someone who advocates for shifting the conversation from mere awareness to genuine acceptance and support.

My Experience with Anxiety and Autism

As an autistic person, my challenges with social interaction have led to intense social anxiety. Along with sensory overload, this has made it difficult to connect with others. I constantly worried about saying something that might abruptly end a conversation. I wondered whether others were silently questioning my intelligence – and then I started doubting myself. I’d hear echoes of childhood bullies calling me the r-word. 

At the same time, I struggle to focus. Maintaining eye contact, interpreting nonverbal cues, and processing what someone is saying – all at once – can be overwhelming. Sometimes, I’m so busy trying to decipher a hand gesture or mistakenly interpret a glance away as disinterest that I completely miss what’s being said.

To be clear, not all autistic people experience social anxiety, but many of us do.

One of the most challenging experiences for me has been job interviews. I never know what to expect: what questions will be asked, how I’ll answer them, or whether I’ll process my thoughts quickly enough. I overthink every possible outcome, suppress the need to stim, and often sit there, speechless, imposter syndrome kicking into gear. Bright lights, unfamiliar environments, and trying to maintain eye contact while answering questions only add to the stress. 

But in reality, many autistic people are the best fit for certain roles – interviews just aren’t where some of us shine.  


The Challenges of Navigating a Neurotypical World

Like many other societal norms, we’re expected to live a certain way, and it can be frustrating. Autistic people are expected to accommodate neuro-conforming expectations, but what about us? What about our comfort?

Misunderstandings are all too common. Some people believe that autistic people lack empathy, which isn’t true. The double empathy problem explains that the difficulty in understanding goes both ways – neurodivergent and neurotypical people struggle to relate to each other.

Much of my anxiety stems from being misunderstood, which happens a lot.

For example, people sometimes notice that autistic people “talk about themselves” in conversations. A former friend once shared a problem, and I related by mentioning a similar experience. Instead of seeing it as my way of trying to connect, they assumed I was trying to make it about myself. When this happened, I felt selfish – like I had taken the spotlight away from them. That worry stuck with me, replaying in my head over and over. Eventually, my anxiety around this grew so much that I started avoiding it altogether, afraid of being perceived the wrong way.

Finding Self-Acceptance

Self-acceptance didn’t come easily. For years, I’ve spent a lot of time introspectively. I threw myself into research, reading everything I could about autism and anxiety. I had those “aha” moments where, suddenly, my experiences made sense. 

But knowledge alone wasn’t enough. 

What helped was allowing myself to explore who I was – not just through research, but through conversations with people who understood. Connecting with other neurodivergent people, hearing their stories – or reading if we messaged – and realising I wasn’t alone made all the difference. 

It is far from easy to practice self-compassion, especially when you’re used to being self-critical. But it’s necessary. 

Why Autism Acceptance Month Matters

We have plenty of events dedicated to “awareness” – but we’re at a point where we need more than that. We need Autism Acceptance Month because awareness alone isn’t enough. People know about autism – but do they accept autistic people? 

We need to challenge ableism because autistic people are targets of it too. Often, we’re dismissed since our challenges are “invisible” – or not as visible as people with physical disabilities. We need accommodations and accessibility to thrive. That includes flexible work arrangements, sensory-friendly environments, and interview structures that don’t disadvantage neurodivergent candidates. 

If you want to support autistic people, ask us what we need. Don’t assume – understand that we know ourselves best. 


Conclusion

I may always struggle with anxiety, and being autistic isn’t something I can change. But that doesn’t mean I can’t thrive.

Anxiety is part of the human experience, and for some, it can stop you from truly living. 

I’m hopeful for the future, witnessing more neurodivergent creators on social platforms and seeing more companies expression a willingness to accommodate people living with disabilities during job interviews (Though, I won’t lie – I often question how genuine these efforts are). 

The more we challenge ableism and push for acceptance, the closer we get to a world where autistic people don’t have to fight so hard to be understood.

What YOU can do to support autism acceptance

In honour of Autism Acceptance Month in April, we invite you to join a nationwide movement for acceptance, understanding and accessibility.  

We are asking businesses, workplaces, schools and organisations to participate in a national ‘quiet hour’ on Wednesday April 2nd, at 10am. Turn down the lights, turn down the noise and turn up for the autistic community of Aotearoa.

To learn more, visit https://autismnz.org.nz/autism-acceptance-month/

Need Immediate Help?

If you are worried about the safety of a loved one, or someone else, you can call the Crisis Team on 0800 800 717 or dial 111 in an emergency. 

Important numbers and resources to find advice and support at a time of crisis or distress:
  • Free call or text 1737 any time for support from a trained counsellor.

  • Lifeline 0800 543 354 or (09) 522 2999 | Free text 4357 (HELP)

  • Youthline 0800 376 633

  • Samaritans 0800 726 666

  • If you or someone you know is at risk of harm: dial 111 or visit your nearest hospital emergency department. 

  • Call 0800 611 116 for your nearest DHB Mental Health Crisis Team (CATT Team).

Do you need support? Yellow Brick Road is a national organisation that provides support for whānau who have a loved one experiencing mental health challenges. 

For more information about helping family / whānau visit mentalhealth.org.nz

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